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    Last Updated: 01/09/2026

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    MediFind found 16 doctor with experience in Lhermitte-Duclos Disease near Saint Louis, MO. Of these, 14 are Experienced and 2 are Advanced.

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    LocationClose
    16 providers found
      Advanced in Lhermitte-Duclos Disease
      Advanced in Lhermitte-Duclos Disease

      Washington University

      510 S Kingshighway Blvd, Mir Tower 6th Fl Dept Radi, 
      Saint Louis, MO 
       (3.7 miles away)
      Languages Spoken:
      English, Korean
      Accepting New Patients

      Thomas Kim is a Radiologist in Saint Louis, Missouri. Dr. Kim is rated as an Advanced provider by MediFind in the treatment of Lhermitte-Duclos Disease. His top areas of expertise are Cortical Dysplasia, Lhermitte-Duclos Disease, Focal or Multifocal Malformations in Neuronal Migration, and Subependymal Nodular Heterotopia. Dr. Kim is currently accepting new patients.

      Advanced in Lhermitte-Duclos Disease
      Neurology | Pediatrics
      Advanced in Lhermitte-Duclos Disease
      Neurology | Pediatrics
      1 Childrens Pl # 3S34, 
      Saint Louis, MO 
       (3.7 miles away)
      Languages Spoken:
      English
      Accepting New Patients

      Elizabeth Wright-Jin is a Neurologist and a Pediatrics provider in Saint Louis, Missouri. Dr. Wright-Jin is rated as an Advanced provider by MediFind in the treatment of Lhermitte-Duclos Disease. Her top areas of expertise are Corpus Callosum Agenesis, Aicardi Syndrome, Acrocallosal Syndrome, and Bone Dysplasia Corpus Callosum Agenesis. Dr. Wright-Jin is currently accepting new patients.

      Experienced in Lhermitte-Duclos Disease
      Pediatric Neurology | General Surgery | Neurosurgery
      Experienced in Lhermitte-Duclos Disease
      Pediatric Neurology | General Surgery | Neurosurgery

      Ssm Health Care Group

      1465 S Grand Blvd, 
      Saint Louis, MO 
       (2.2 miles away)
      Languages Spoken:
      English

      Ali Jamal is a Pediatric Neurologist and a General Surgeon in Saint Louis, Missouri. Dr. Jamal is rated as an Experienced provider by MediFind in the treatment of Lhermitte-Duclos Disease. His top areas of expertise are Neurofibromatosis, Neurofibromatosis Type 1 (NF1), Seizures, Heart Failure with Preserved Ejection Fraction (HFpEF), and Gastric Bypass.

      Learn about our expert tiers
      Experienced in Lhermitte-Duclos Disease
      Pediatric Neurology | Pediatrics | Neurology
      Experienced in Lhermitte-Duclos Disease
      Pediatric Neurology | Pediatrics | Neurology
      1 Childrens Pl, 
      Saint Louis, MO 
       (3.6 miles away)
      Languages Spoken:
      English
      Accepting New Patients

      Swati Karmarkar is a Pediatric Neurologist and a Pediatrics provider in Saint Louis, Missouri. Dr. Karmarkar is rated as an Experienced provider by MediFind in the treatment of Lhermitte-Duclos Disease. Her top areas of expertise are Seizures, Generalized Tonic-Clonic Seizure, Memory Loss, and Genetic Epilepsy with Febrile Seizures Plus (GEFS+). Dr. Karmarkar is currently accepting new patients.

      Experienced in Lhermitte-Duclos Disease
      Pediatric Neurology | Neurology
      Experienced in Lhermitte-Duclos Disease
      Pediatric Neurology | Neurology
      1 Childrens Pl, Div Neurology Pediatrics, 
      Saint Louis, MO 
       (3.6 miles away)
      Languages Spoken:
      English
      Accepting New Patients

      Lindsay Peglar-Marsala is a Pediatric Neurologist and a Neurologist in Saint Louis, Missouri. Dr. Peglar-Marsala is rated as an Experienced provider by MediFind in the treatment of Lhermitte-Duclos Disease. Her top areas of expertise are Focal or Multifocal Malformations in Neuronal Migration, Subcortical Band Heterotopia, Subependymal Nodular Heterotopia, and Periventricular Heterotopia. Dr. Peglar-Marsala is currently accepting new patients.

      Experienced in Lhermitte-Duclos Disease
      Medical Genetics | Pediatrics
      Experienced in Lhermitte-Duclos Disease
      Medical Genetics | Pediatrics

      Washington University

      1 Childrens Pl, 
      Saint Louis, MO 
       (3.6 miles away)
      Languages Spoken:
      English
      Accepting New Patients

      Marwan Shinawi is a Medical Genetics specialist and a Pediatrics provider in Saint Louis, Missouri. Dr. Shinawi is rated as an Experienced provider by MediFind in the treatment of Lhermitte-Duclos Disease. His top areas of expertise are Hypotonia, Polysyndactyly Cardiac Malformation, Osteopathia Striata Cranial Sclerosis, and Increased Head Circumference. Dr. Shinawi is currently accepting new patients.

      Experienced in Lhermitte-Duclos Disease
      Experienced in Lhermitte-Duclos Disease
      1 Childrens Pl, Div Ped Neurological Surgery, Ste 4e, 
      Saint Louis, MO 
       (3.6 miles away)
      Languages Spoken:
      English

      Jennifer Strahle is a Neurosurgery provider in Saint Louis, Missouri. Dr. Strahle is rated as an Experienced provider by MediFind in the treatment of Lhermitte-Duclos Disease. Her top areas of expertise are Chiari Malformation Type 2, Syringomyelia, Chiari Malformation, Posterior Fossa Decompression, and Endoscopy.

      Experienced in Lhermitte-Duclos Disease
      Experienced in Lhermitte-Duclos Disease

      Washington University

      1 Barnes Jewish Hospital Plz, 
      Saint Louis, MO 
       (3.6 miles away)
      Languages Spoken:
      English

      Carrie Coughlin is a Dermatologist in Saint Louis, Missouri. Dr. Coughlin is rated as an Experienced provider by MediFind in the treatment of Lhermitte-Duclos Disease. Her top areas of expertise are Giant Congenital Melanocytic Nevus, Comedones, Neurocutaneous Melanosis, and Squamous Cell Skin Carcinoma.

      Experienced in Lhermitte-Duclos Disease
      Experienced in Lhermitte-Duclos Disease

      Washington University

      1 Barnes Jewish Hospital Plz, 
      Saint Louis, MO 
       (3.6 miles away)
      Languages Spoken:
      English
      Accepting New Patients

      Robert Bucelli is a Neurologist in Saint Louis, Missouri. Dr. Bucelli is rated as an Experienced provider by MediFind in the treatment of Lhermitte-Duclos Disease. His top areas of expertise are Amyotrophic Lateral Sclerosis (ALS or Lou Gehrig's Disease), Encephalitis, Creutzfeldt-Jakob Disease, Anti-NMDA Receptor Encephalitis, and Gastrostomy. Dr. Bucelli is currently accepting new patients.

      Experienced in Lhermitte-Duclos Disease
      Experienced in Lhermitte-Duclos Disease

      Washington University

      1 Barnes Jewish Hospital Plz, Fl 3, 
      Saint Louis, MO 
       (3.6 miles away)
      Languages Spoken:
      English
      Accepting New Patients

      Ilana Rosman is a Dermatologist in Saint Louis, Missouri. Dr. Rosman is rated as an Experienced provider by MediFind in the treatment of Lhermitte-Duclos Disease. Her top areas of expertise are Syringoma, Osteopoikilosis, Basal Cell Skin Cancer, and Squamous Cell Skin Carcinoma. Dr. Rosman is currently accepting new patients.

      Experienced in Lhermitte-Duclos Disease
      Experienced in Lhermitte-Duclos Disease

      Washington University

      510 S Kingshighway Blvd, 
      Saint Louis, MO 
       (3.7 miles away)
      Languages Spoken:
      English
      Accepting New Patients

      Andrew Greer is a Radiologist in Saint Louis, Missouri. Dr. Greer is rated as an Experienced provider by MediFind in the treatment of Lhermitte-Duclos Disease. His top areas of expertise are Vertigo, Herniated Disk, Lymphofollicular Hyperplasia, and CAPOS Syndrome. Dr. Greer is currently accepting new patients.

      Experienced in Lhermitte-Duclos Disease
      Pediatric Radiology | Radiology
      Experienced in Lhermitte-Duclos Disease
      Pediatric Radiology | Radiology

      Touchette Regional Hospital Inc

      5900 Bond Ave, 
      Cahokia Heights, IL 
       (6.2 miles away)
      Languages Spoken:
      English

      Scott Long is a Pediatric Radiologist and a Radiologist in Cahokia Heights, Illinois. Dr. Long is rated as an Experienced provider by MediFind in the treatment of Lhermitte-Duclos Disease. His top areas of expertise are Tenosynovitis, Pleural Effusion, Pleurisy, Nasal Flaring, and Gastrostomy.

      Experienced in Lhermitte-Duclos Disease
      Neurosurgery
      Experienced in Lhermitte-Duclos Disease
      Neurosurgery

      Urology Of St. Louis

      Neurosurgery Of St. Louis, 12855 North 40 Drive Suite 125 North Tower, 
      Saint Louis, MO 
       (14.2 miles away)
      Languages Spoken:
      English

      Sarah Travers is a Neurosurgery provider in Saint Louis, Missouri. Dr. Travers is rated as an Experienced provider by MediFind in the treatment of Lhermitte-Duclos Disease. Her top areas of expertise are Metastatic Brain Tumor, Brain Herniation, Chiari Malformation Type 1, and Chiari Malformation.

      Experienced in Lhermitte-Duclos Disease
      Neurology
      Experienced in Lhermitte-Duclos Disease
      Neurology

      Office

      621 S New Ballas Rd Ste 5003B, 
      Saint Louis, MO 
       (14.2 miles away)
      Languages Spoken:
      English

      Kyeong Lee is a Neurologist in Saint Louis, Missouri. Dr. Lee is rated as an Experienced provider by MediFind in the treatment of Lhermitte-Duclos Disease. His top areas of expertise are Susac Syndrome, Movement Disorders, Parkinson's Disease, and Dravet Syndrome.

      Experienced in Lhermitte-Duclos Disease
      Experienced in Lhermitte-Duclos Disease

      Clinical Radiologists Sc

      4500 Memorial Dr, 
      Belleville, IL 
       (10.9 miles away)
      Languages Spoken:
      English
      Accepting New Patients

      Alex Mayeux is a Radiologist in Belleville, Illinois. Dr. Mayeux is rated as an Experienced provider by MediFind in the treatment of Lhermitte-Duclos Disease. His top areas of expertise are Cerebellar Multiple System Atrophy, Hepatocerebral Degeneration, Visceromegaly, and Splenomegaly. Dr. Mayeux is currently accepting new patients.

      Experienced in Lhermitte-Duclos Disease
      Experienced in Lhermitte-Duclos Disease

      Central Illinois Radiological Associates Ltd

      1512 N Green Mount Rd, 
      O Fallon, IL 
       (14.9 miles away)
      Languages Spoken:
      English

      Simon Bekker is a Radiologist in O Fallon, Illinois. Dr. Bekker is rated as an Experienced provider by MediFind in the treatment of Lhermitte-Duclos Disease. His top areas of expertise are CAPOS Syndrome, Headache, Aseptic and Alopecic Nodules of Scalp (AANS), and Vertigo.

      Showing 1-16 of 16

      Last Updated: 01/09/2026

      What is the definition of Lhermitte-Duclos Disease?

      Lhermitte-Duclos disease (LDD) is a very rare, benign (non-cancerous) brain tumor, called a dysplastic gangliocytoma of the cerebellum, that is characterized by abnormal development and enlargement of the cerebellum, and an increased intracranial pressure. LDD manifests most commonly in the third and fourth decades of life. Symptoms may include headache, nausea, cerebellar dysfunction, hydrocephalus, ataxia (problems with movement and coordination), and visual disturbances. Other features may include an enlarged brain (megalencephaly), hydromyelia, extra fingers or toes (polydactyly), partial gigantism, and/or a large tongue (macroglossia). Lhermitte-Duclos disease can occur as an isolated condition; it is also associated with a hereditary cancer syndrome called Cowden disease. Although the exact cause is unknown, genetic changes in the PTEN gene have been identified in some individuals with LDD.

      When should I see a Lhermitte-Duclos Disease doctor near Saint Louis, MO?

      There are various reasons why you may want to see a specialist, such as: 

      • Your primary care provider recommends it. 
      • Your condition requires expert knowledge and specialized care. 
      • Your symptoms persist or worsen despite treatment. 
      • You need specialized testing or procedures. 
      • You want a second opinion.  

      What should I consider when choosing a Lhermitte-Duclos Disease doctor near Saint Louis, MO?

      It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

      How does MediFind rank Lhermitte-Duclos Disease doctors near Saint Louis, MO?

      MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

      What types of insurance are accepted by Lhermitte-Duclos Disease doctors near Saint Louis, MO?

      Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

      How can I book an appointment online with a Lhermitte-Duclos Disease doctor near Saint Louis, MO?

      MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Lhermitte-Duclos Disease doctor search results page. 

      Why is it important to get a second opinion from a different Lhermitte-Duclos Disease doctor?

      Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

      How can I prepare for my appointment with a Lhermitte-Duclos Disease doctor near Saint Louis, MO?

      Prepare for your appointment by gathering the following items: 

      • Copies of medical records (dating back at least one year) 
      • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
      • Family history of disease 
      • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
      • Allergies to medications, food, latex, insects, etc.  
      • List of questions and concerns 
      • Your insurance card 

      You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

      What questions should I ask my Lhermitte-Duclos Disease doctor?

      Here are some sample questions: 

      • Can you explain in simple terms what this condition is and how it’s treated? 
      • What symptoms or side effects should I watch for? 
      • What tests will be involved, and when can I expect results? 
      • Are there other specialists I need to see? 
      • What’s the best way to reach you if I have follow-up questions? 

      How can I learn about the latest clinical trials and research advances my Lhermitte-Duclos Disease doctor may know about?

      MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

      MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

      Can I filter my search to show male or female Lhermitte-Duclos Disease doctors near Saint Louis, MO?

      Look for the filter feature on the left side of the Lhermitte-Duclos Disease doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

      Can I filter my search to find a Lhermitte-Duclos Disease doctor that offers video calls?

      Look for the filter feature on the left-side of the Lhermitte-Duclos Disease doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

      Reviewed on: 11/11/24  

      By: MediFind Medical Staff 

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