The 20 Best Lhermitte-Duclos Disease Doctors Near Me in Saint Louis, MO

Find the Top Lhermitte-Duclos Disease Experts and Specialists

The 20 Best Lhermitte-Duclos Disease Doctors near Saint Louis, MO

Last Updated: 02/22/2026

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MediFind found 13 doctor with experience in Lhermitte-Duclos Disease near Saint Louis, MO. Of these, 12 are Experienced and 1 are Advanced.

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13 providers found
    Advanced in Lhermitte-Duclos Disease
    Neuroradiology
    Advanced in Lhermitte-Duclos Disease
    Neuroradiology

    Barnes Hospital Washington University

    510 S Kingshighway Blvd, 
    Saint Louis, MO 
     (3.7 miles away)
    Languages Spoken:
    English

    Thomas Kim Jr is a Neuroradiologist in Saint Louis, Missouri. Dr. Kim Jr is rated as an Advanced provider by MediFind in the treatment of Lhermitte-Duclos Disease. His top areas of expertise are Lhermitte-Duclos Disease, Subependymal Nodular Heterotopia, Subcortical Band Heterotopia, and Periventricular Heterotopia.

    Experienced in Lhermitte-Duclos Disease
    Dermatology
    Experienced in Lhermitte-Duclos Disease
    Dermatology

    Office

    4901 Forest Park Ave Ste 502, 
    Saint Louis, MO 
     (3.2 miles away)
    Languages Spoken:
    English

    Ilana Rosman is a Dermatologist in Saint Louis, Missouri. Dr. Rosman is rated as an Experienced provider by MediFind in the treatment of Lhermitte-Duclos Disease. Her top areas of expertise are Syringoma, Osteopoikilosis, Basal Cell Skin Cancer, and Squamous Cell Skin Carcinoma.

    Experienced in Lhermitte-Duclos Disease
    Experienced in Lhermitte-Duclos Disease

    Office

    1 Childrens Pl Ste 2A, 
    Saint Louis, MO 
     (3.7 miles away)
    Languages Spoken:
    English

    Carrie Coughlin is a Pediatrics provider in Saint Louis, Missouri. Dr. Coughlin is rated as an Experienced provider by MediFind in the treatment of Lhermitte-Duclos Disease. Her top areas of expertise are Giant Congenital Melanocytic Nevus, Neurocutaneous Melanosis, Comedones, and Squamous Cell Skin Carcinoma.

    Learn about our expert tiers
    Ali Jamal
    Experienced in Lhermitte-Duclos Disease
    Neurology | Pediatric Neurology
    Experienced in Lhermitte-Duclos Disease
    Neurology | Pediatric Neurology

    SSM Health Cardinal Glennon Pediatrics Specialty Services - Grand Boulevard

    1465 S. Grand Blvd., 
    St. Louis, MO 
     (2.2 miles away)
    Languages Spoken:
    English

    Ali Jamal is a Neurologist and a Pediatric Neurologist in St. Louis, Missouri. Dr. Jamal is rated as an Experienced provider by MediFind in the treatment of Lhermitte-Duclos Disease. His top areas of expertise are Neurofibromatosis, Neurofibromatosis Type 1 (NF1), Seizures, Heart Failure with Preserved Ejection Fraction (HFpEF), and Gastric Bypass.

    David Clifford
    Experienced in Lhermitte-Duclos Disease
    Experienced in Lhermitte-Duclos Disease

    Office

    4921 Parkview Pl Ste 6C, 
    Saint Louis, MO 
     (3.6 miles away)
    Languages Spoken:
    English

    David Clifford is a Neurologist in Saint Louis, Missouri. Dr. Clifford is rated as an Experienced provider by MediFind in the treatment of Lhermitte-Duclos Disease. His top areas of expertise are Progressive Multifocal Leukoencephalopathy, CACH Syndrome, Encephalitis, and Neurosarcoidosis.

    Experienced in Lhermitte-Duclos Disease
    Neurosurgery
    Experienced in Lhermitte-Duclos Disease
    Neurosurgery

    Office

    4500 Forest Park Ave Ste 1B, 
    Saint Louis, MO 
     (3.2 miles away)
    Languages Spoken:
    English
    Offers Telehealth

    Gregory Zipfel is a Neurosurgery provider in Saint Louis, Missouri. Dr. Zipfel is rated as an Experienced provider by MediFind in the treatment of Lhermitte-Duclos Disease. His top areas of expertise are Subarachnoid Hemorrhage, Arteriovenous Malformation, Meningioma, Endovascular Embolization, and Thrombectomy.

    Experienced in Lhermitte-Duclos Disease
    Experienced in Lhermitte-Duclos Disease

    Office

    4921 Parkview Pl Ste 6C, 
    Saint Louis, MO 
     (3.6 miles away)
    Languages Spoken:
    English

    Robert Bucelli is a Neurologist in Saint Louis, Missouri. Dr. Bucelli is rated as an Experienced provider by MediFind in the treatment of Lhermitte-Duclos Disease. His top areas of expertise are Amyotrophic Lateral Sclerosis (ALS or Lou Gehrig's Disease), Encephalitis, Creutzfeldt-Jakob Disease, Anti-NMDA Receptor Encephalitis, and Gastrostomy.

    Experienced in Lhermitte-Duclos Disease
    Medical Genetics | Pediatrics
    Experienced in Lhermitte-Duclos Disease
    Medical Genetics | Pediatrics

    Washington University

    1 Childrens Pl, 
    Saint Louis, MO 
     (3.6 miles away)
    Languages Spoken:
    English
    Accepting New Patients

    Marwan Shinawi is a Medical Genetics specialist and a Pediatrics provider in Saint Louis, Missouri. Dr. Shinawi is rated as an Experienced provider by MediFind in the treatment of Lhermitte-Duclos Disease. His top areas of expertise are Hypotonia, Polysyndactyly Cardiac Malformation, Osteopathia Striata Cranial Sclerosis, and Increased Head Circumference. Dr. Shinawi is currently accepting new patients.

    Experienced in Lhermitte-Duclos Disease
    Pediatric Neurology
    Experienced in Lhermitte-Duclos Disease
    Pediatric Neurology

    Office

    1 Childrens Pl Ste 2130, 
    Saint Louis, MO 
     (3.7 miles away)
    Languages Spoken:
    English

    Lindsay Peglar is a Pediatric Neurologist in Saint Louis, Missouri. Dr. Peglar is rated as an Experienced provider by MediFind in the treatment of Lhermitte-Duclos Disease. Her top areas of expertise are Subcortical Band Heterotopia, Periventricular Heterotopia, Subependymal Nodular Heterotopia, and Focal or Multifocal Malformations in Neuronal Migration.

    Experienced in Lhermitte-Duclos Disease
    Experienced in Lhermitte-Duclos Disease

    Office

    1 Childrens Pl Ste 4S20, 
    Saint Louis, MO 
     (3.7 miles away)
    Languages Spoken:
    English

    Jennifer Strahle is a Neurosurgery provider in Saint Louis, Missouri. Dr. Strahle is rated as an Experienced provider by MediFind in the treatment of Lhermitte-Duclos Disease. Her top areas of expertise are Chiari Malformation Type 2, Syringomyelia, Chiari Malformation, Posterior Fossa Decompression, and Endoscopy.

    Experienced in Lhermitte-Duclos Disease
    Experienced in Lhermitte-Duclos Disease

    Office

    2100 Madison Ave, 
    Granite City, IL 
     (5.9 miles away)
    Languages Spoken:
    English
    Offers Telehealth

    David Huyette is a Radiologist in Granite City, Illinois. Dr. Huyette is rated as an Experienced provider by MediFind in the treatment of Lhermitte-Duclos Disease. His top areas of expertise are Blau Syndrome, Chronic Granulomatous Disease, Emphysema, and Olivopontocerebellar Atrophy.

    Experienced in Lhermitte-Duclos Disease
    Neurosurgery
    Experienced in Lhermitte-Duclos Disease
    Neurosurgery

    Urology Of St. Louis

    Neurosurgery Of St. Louis, 12855 North 40 Drive Suite 125 North Tower, 
    Saint Louis, MO 
     (14.2 miles away)
    Languages Spoken:
    English

    Sarah Travers is a Neurosurgery provider in Saint Louis, Missouri. Dr. Travers is rated as an Experienced provider by MediFind in the treatment of Lhermitte-Duclos Disease. Her top areas of expertise are Metastatic Brain Tumor, Chiari Malformation Type 1, Brain Herniation, and Chiari Malformation.

    Experienced in Lhermitte-Duclos Disease
    Neurology
    Experienced in Lhermitte-Duclos Disease
    Neurology

    Office

    621 S New Ballas Rd Ste 5003B, 
    Saint Louis, MO 
     (14.2 miles away)
    Languages Spoken:
    English

    Kyeong Lee is a Neurologist in Saint Louis, Missouri. Dr. Lee is rated as an Experienced provider by MediFind in the treatment of Lhermitte-Duclos Disease. His top areas of expertise are Susac Syndrome, Movement Disorders, Parkinson's Disease, and Dravet Syndrome.

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    Last Updated: 02/22/2026

    What is the definition of Lhermitte-Duclos Disease?

    Lhermitte-Duclos disease (LDD) is a very rare, benign (non-cancerous) brain tumor, called a dysplastic gangliocytoma of the cerebellum, that is characterized by abnormal development and enlargement of the cerebellum, and an increased intracranial pressure. LDD manifests most commonly in the third and fourth decades of life. Symptoms may include headache, nausea, cerebellar dysfunction, hydrocephalus, ataxia (problems with movement and coordination), and visual disturbances. Other features may include an enlarged brain (megalencephaly), hydromyelia, extra fingers or toes (polydactyly), partial gigantism, and/or a large tongue (macroglossia). Lhermitte-Duclos disease can occur as an isolated condition; it is also associated with a hereditary cancer syndrome called Cowden disease. Although the exact cause is unknown, genetic changes in the PTEN gene have been identified in some individuals with LDD.

    When should I see a Lhermitte-Duclos Disease doctor near Saint Louis, MO?

    There are various reasons why you may want to see a specialist, such as: 

    • Your primary care provider recommends it. 
    • Your condition requires expert knowledge and specialized care. 
    • Your symptoms persist or worsen despite treatment. 
    • You need specialized testing or procedures. 
    • You want a second opinion.  

    What should I consider when choosing a Lhermitte-Duclos Disease doctor near Saint Louis, MO?

    It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

    How does MediFind rank Lhermitte-Duclos Disease doctors near Saint Louis, MO?

    MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

    What types of insurance are accepted by Lhermitte-Duclos Disease doctors near Saint Louis, MO?

    Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

    How can I book an appointment online with a Lhermitte-Duclos Disease doctor near Saint Louis, MO?

    MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Lhermitte-Duclos Disease doctor search results page. 

    Why is it important to get a second opinion from a different Lhermitte-Duclos Disease doctor?

    Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

    How can I prepare for my appointment with a Lhermitte-Duclos Disease doctor near Saint Louis, MO?

    Prepare for your appointment by gathering the following items: 

    • Copies of medical records (dating back at least one year) 
    • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
    • Family history of disease 
    • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
    • Allergies to medications, food, latex, insects, etc.  
    • List of questions and concerns 
    • Your insurance card 

    You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

    What questions should I ask my Lhermitte-Duclos Disease doctor?

    Here are some sample questions: 

    • Can you explain in simple terms what this condition is and how it’s treated? 
    • What symptoms or side effects should I watch for? 
    • What tests will be involved, and when can I expect results? 
    • Are there other specialists I need to see? 
    • What’s the best way to reach you if I have follow-up questions? 

    How can I learn about the latest clinical trials and research advances my Lhermitte-Duclos Disease doctor may know about?

    MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

    MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

    Can I filter my search to show male or female Lhermitte-Duclos Disease doctors near Saint Louis, MO?

    Look for the filter feature on the left side of the Lhermitte-Duclos Disease doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

    Can I filter my search to find a Lhermitte-Duclos Disease doctor that offers video calls?

    Look for the filter feature on the left-side of the Lhermitte-Duclos Disease doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

    Reviewed on: 11/11/24  

    By: MediFind Medical Staff 

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